A Letter from Patti

Okay, there has been much thought put into this and believe me, I have cried enough in the past couple of days so please respect my decisions. My head tells me to stay in Cleveland but my heart tells me to go back to the comfort of my own home. The pros and cons have been weighed and my heart wins. I am not thinking about the money part of it, so don't think that that's the reason I don't want to stay in Cleveland.

I think that this is happening for a reason and maybe the reason is that my heart wanted to be home so bad for the holidays and possibly Brady's first birthday. Maybe my New Year will really be started with my new organs.

The doctors have informed me that at this point, no matter how much they call the OPO (Organ Procurement Organization), I will not get the organs if there are people who are more sick and match the same organs. My scores will pretty much not change either. I guess the only way that my lung score will change (a big jump anyway) is if I'm on a ventilator and we don't want that.

We are also going to rotate (or whatever) antibiotics to try to keep me more healthy. Also, I have talked to Dr. Mehta about if I need to be hospitalized again for a flare up, he said that I can stay at University hospital unless my lungs take a major turn for the worse or I start coughing up blood again, then I have to come back out here.

My mom will be putting her stuff in storage and coming to stay with us to help with Brady and things around that house. So, this is how it is for now.

If we get the trasnplants before the holidays, that's fine with me too but at least I can be home for a little while. I still have my worries about the snow and possibly not being able to fly, but that's the chance that we would take if I never came out here to begin with. Anyhow, plans are for me to be out of here Friday (December 1, 2006) morning and on my way home. Please pass this on to others that are on your lists so they know not to send me mail out here anymore.

Thank you and love you all!
Patti